Judge: web sites for health - support group guidelines - how to produce

	1.0 How to produce:

		1.1 Trust and reputation 1.2 Details of the organisation 1.3 Purpose of the organisation 1.4 Associated organisations 1.5 Funding sources 1.6 The way the information is written 1.7 Non-English language material 1.8 Descriptions of conditions and treatments 1.9 Medical research 1.10 Personal experiences 1.11 Communication 1.12 Links to other sites 1.13 Data protection 1.14 Copyright 1.15 Terms and conditions 1.16 Disclaimers 1.17 Kitemarks 1.18 Advertising 1.19 Interactive facilities 1.20 Other quality guidelines

1.10 Personal experiences

Personal experiences are important sources of help and information.

Clearly mark personal experiences as personal experiences.
Try to include 'success' stories and look at the pros and cons of a condition.
Ensure that no details could identify the individual concerned or:
(a) obtain written permission from the individual to make their personal information publicly available.
Ensure that personal experiences do not contain inaccurate statements about medical facts and treatments.
Challenging service provision and professional practice with the aim of improving them is an important aspect. However the identification of individual people and organisations could cause problems. You may need to take legal advice.

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© Copyright for this site is held by Contact a Family and the Information Society Research and Consultancy Group, School of Computing, Engineering and Information Sciences, Northumbria University. Site published February 2003. Last updated October 2006. Review date October 2007.